MALLORY GOES HOME TODAY!!!!!!

[Kristen]

I’m very sorry to hear about the brain damage – it must be hard for everyone involved. But hey, kids are fighters, right? Maybe if the spot is in a location that can be bypassed, then perhaps the damage could be not as bad as predicted. I’ve heard of it happening before.

*sending prayers, and strengthening and healing thoughts Mallory’s way*

[Katherine]

skigod377 wrote:

Im so sorry. Its nice that you will both be able to support eachother emotionally throughout the years. Dealing with a premie is no easy task either 🙁 I will pray for you both. Any word on what her brain condition means for her future?

They don’t know quite yet. They might find out more on Tuesday when additional brain scans are completed.

Kyrin wrote:

Children are amazing in what they can overcome, I think a wait and see stance is what we should take for now, after all she is so young and little and it is entirely possible what they are seeing and predicting may not be as bad as they think.

Keep in mind that doctors always default to the worst case scenerio, so hang in there!
Kyrin

I really do hope that it isn’t as bad as they think. I didn’t know that doctors default to the worse case scenerio.

twindragonsmum wrote:

I know it’s extremely difficult in situations like this to remain positive, but try to remember that positive, upbeat feelings can and do have an effect on the baby’s recovery. I have a some friends whose daughter was premature and their nurses helped them to stay strong and positive. The nurses suggested that the only people allowed in to visit were ones that could help maintain an upbeat spirit. With that in mind, I’ll continue to keep your family in my prayers *sending calm, peaceful, strenghthening thoughts your way…*

twindragonsmum

I will mention that, it’s good to know!D

I hope everyone’s wishes come true that she can compensate for any damage that she has, or they can bypass it. Thank you everyone for the prayers and warm wishes! 🙂

[twindragonsmum]

Any time, eaglefeather! Isn’t that what families are for and aren’t we one big family? 😀

tdm

[Shawna]

Think about it, if doctors told us everything would be fine and then it isn’t, what is the reaction?? Hostility, anger, feelings of betrayal, lawsuits.

If they tell us the worst that could happen and then it doesn’t then it’s a miracle, everyone is happy and no lawsuits. Also, in cases that don’t appear to have a good outlook, doctors are delighted to be wrong about that worst case scenerio.

But we’d be pissed if they didn’t prepare us for the worst, and really it is best to lay it all out. Most of the time the situation resolves into the middle possiblities, not worst, but not best either. With situations like Mallory faces, it is hard to predict.

Biggest thing with healing is that how a body/person adapts to injury/physical challenges is so unpredictable and individuallistic. For example, (gonna use sheep for this) We had one ewe attacked by a dog, she had one bite on the leg, nothing major, certaintly not a fatal wound by any stretch. Died from shock less than a hour after injury. Another ewe, attempted to jump an electric fence, got hung up on it for 3 days, getting zapped, no water or food and carrying lambs. Serious burns, and dehydration, definately fatal injuries. Recovered fully and delivered healthy lambs in spring.

Why did one ewe survive serious injuries and the other die from minor ones? No one knows.

People are the same. You never know who is going to overcome the worst that could happen and who is going to give up at the most minor of occurances. Makes it hard for doctors to say what will happen, because some people really shock the hell out of everyone by not only surviving but healing to their full potential.

My friend Jim completely destroyed his knee in track in high school, to the point where they said he would never walk again. A year later he was walking, he told them they were wrong then set out to prove it.

Mallory is strong, determined and still here. Every day gives us hope for her. If she wasn’t meant to overcome the odds; we’d have lost her by now, I have faith she will become a very exceptional person and will do great things with her life.

Believe in her, she really needs that.

Kyrin

[Katherine]

Kyrin wrote:

Think about it, if doctors told us everything would be fine and then it isn’t, what is the reaction?? Hostility, anger, feelings of betrayal, lawsuits.

If they tell us the worst that could happen and then it doesn’t then it’s a miracle, everyone is happy and no lawsuits. Also, in cases that don’t appear to have a good outlook, doctors are delighted to be wrong about that worst case scenerio.

But we’d be pissed if they didn’t prepare us for the worst, and really it is best to lay it all out. Most of the time the situation resolves into the middle possiblities, not worst, but not best either. With situations like Mallory faces, it is hard to predict.

Biggest thing with healing is that how a body/person adapts to injury/physical challenges is so unpredictable and individuallistic. For example, (gonna use sheep for this) We had one ewe attacked by a dog, she had one bite on the leg, nothing major, certaintly not a fatal wound by any stretch. Died from shock less than a hour after injury. Another ewe, attempted to jump an electric fence, got hung up on it for 3 days, getting zapped, no water or food and carrying lambs. Serious burns, and dehydration, definately fatal injuries. Recovered fully and delivered healthy lambs in spring.

Why did one ewe survive serious injuries and the other die from minor ones? No one knows.

People are the same. You never know who is going to overcome the worst that could happen and who is going to give up at the most minor of occurances. Makes it hard for doctors to say what will happen, because some people really shock the hell out of everyone by not only surviving but healing to their full potential.

My friend Jim completely destroyed his knee in track in high school, to the point where they said he would never walk again. A year later he was walking, he told them they were wrong then set out to prove it.

Mallory is strong, determined and still here. Every day gives us hope for her. If she wasn’t meant to overcome the odds; we’d have lost her by now, I have faith she will become a very exceptional person and will do great things with her life.

Believe in her, she really needs that.

Kyrin

😥 (Happy tears) Thank you!

[Skigod377]

Great words Kyrin. I hope you are right and I hope we hear some good news on Tuesday. Please keep us posted.

[Bob]

I’m SOOO sorry

[Necron99]

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

[Katherine]

Necron99 wrote:

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

Wow! I didn’t know you weren’t expected to live past 5 years. If you don’t mind me asking, why didn’t they expect you to live long? Thank you for those words! 😀

[Shawna]

eaglefeather831 wrote:

Necron99 wrote:

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

Wow! I didn’t know you weren’t expected to live past 5 years. If you don’t mind me asking, why didn’t they expect you to live long? Thank you for those words! 😀

He had cystic fibrosis, which is genetic, hence why he needed the lung transplant. His lungs malfunctioned by producing too much mucus, thereby inhibiting oxygen exchange and more or less attempting to drown him daily.

I just thought of something…when Alyssa grows up and has children of her own, she is going to need to make very sure that her future husband doesn’t carry any CF genes.

Kyrin

[purpledragonclaw]

I apologize for coming in on this late, eaglefeather, and I’m also sorry to hear such sad news. I will keep you in my prayers and hope that Tuesday brings good news. I will pray for Lance and Carol as well. The best we can do is stay hopeful, send good thoughts and prayers, and keep up the support. Which we will do.

[Necron99]

Kyrin wrote:

eaglefeather831 wrote:

Necron99 wrote:

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

Wow! I didn’t know you weren’t expected to live past 5 years. If you don’t mind me asking, why didn’t they expect you to live long? Thank you for those words! 😀

He had cystic fibrosis, which is genetic, hence why he needed the lung transplant. His lungs malfunctioned by producing too much mucus, thereby inhibiting oxygen exchange and more or less attempting to drown him daily.

I just thought of something…when Alyssa grows up and has children of her own, she is going to need to make very sure that her future husband doesn’t carry any CF genes.

Kyrin

thanks Doc Kyrin 😛 😆 .. just kiddin , yeah i have CF Kyrin explianed it pretty well i could go all scientificy on ya with numbers and gene names but i wont bore ya ..

Alyssa is clean we had the test done not a carrier , PD isnt a carrier so she had a 25% chance of being a carrier since i am the only one with the gene.

here is a little tid bit of info 1 in 24 people in North America are carriers of the CF , which was once a useful mutation as any one with CF or the carrier gene is immune to Typhoid, Bubonic Plauge , and tuburculosis

[Kristen]

Necron99 wrote:

Kyrin wrote:

eaglefeather831 wrote:

Necron99 wrote:

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

Wow! I didn’t know you weren’t expected to live past 5 years. If you don’t mind me asking, why didn’t they expect you to live long? Thank you for those words! 😀

He had cystic fibrosis, which is genetic, hence why he needed the lung transplant. His lungs malfunctioned by producing too much mucus, thereby inhibiting oxygen exchange and more or less attempting to drown him daily.

I just thought of something…when Alyssa grows up and has children of her own, she is going to need to make very sure that her future husband doesn’t carry any CF genes.

Kyrin

thanks Doc Kyrin 😛 😆 .. just kiddin , yeah i have CF Kyrin explianed it pretty well i could go all scientificy on ya with numbers and gene names but i wont bore ya ..

Alyssa is clean we had the test done not a carrier , PD isnt a carrier so she had a 25% chance of being a carrier since i am the only one with the gene.

here is a little tid bit of info 1 in 24 people in North America are carriers of the CF , which was once a useful mutation as any one with CF or the carrier gene is immune to Typhoid, Bubonic Plauge , and tuburculosis

I’ve heard of that! It makes me feel smart, sort of…

I hope tomorrow brings good news for Mallory!

[Shawna]

Necron99 wrote:

Kyrin wrote:

eaglefeather831 wrote:

Necron99 wrote:

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

Wow! I didn’t know you weren’t expected to live past 5 years. If you don’t mind me asking, why didn’t they expect you to live long? Thank you for those words! 😀

He had cystic fibrosis, which is genetic, hence why he needed the lung transplant. His lungs malfunctioned by producing too much mucus, thereby inhibiting oxygen exchange and more or less attempting to drown him daily.

I just thought of something…when Alyssa grows up and has children of her own, she is going to need to make very sure that her future husband doesn’t carry any CF genes.

Kyrin

thanks Doc Kyrin 😛 😆 .. just kiddin , yeah i have CF Kyrin explianed it pretty well i could go all scientificy on ya with numbers and gene names but i wont bore ya ..

Alyssa is clean we had the test done not a carrier , PD isnt a carrier so she had a 25% chance of being a carrier since i am the only one with the gene.

here is a little tid bit of info 1 in 24 people in North America are carriers of the CF , which was once a useful mutation as any one with CF or the carrier gene is immune to Typhoid, Bubonic Plauge , and tuburculosis

Whew! I am so glad Alyssa isn’t a carrier. I knew there was a 1 in 4 chance. You guys lucked out.

If Laurie had carried it too, then Alyssa’s chances would have been 50/50 to have it, not just carry the gene. And here I thought my genetics classes in college were wasted! LOL!

Anyway, I am just really happy that you and your little family are healthy and sound, I don’t know what we’d do around here without your macrabre sense of humor.

Kyrin

[Katherine]

Necron99 wrote:

Kyrin wrote:

eaglefeather831 wrote:

Necron99 wrote:

medical science has come a long way and keeps getting more and more advanced . I hope for thier well being that science will catch up to them and repair what damage was done . With all the things i read in the Medical journals i wouldnt be suprised if it were right around the corner.

Heck i wasnt supposed to live to see 5yrs but now at 30 i have seen first hand what medicine has, can, and will accomplish . Keep a swarky additude and a tough chin everything works out for the best in due time

Wow! I didn’t know you weren’t expected to live past 5 years. If you don’t mind me asking, why didn’t they expect you to live long? Thank you for those words! 😀

He had cystic fibrosis, which is genetic, hence why he needed the lung transplant. His lungs malfunctioned by producing too much mucus, thereby inhibiting oxygen exchange and more or less attempting to drown him daily.

I just thought of something…when Alyssa grows up and has children of her own, she is going to need to make very sure that her future husband doesn’t carry any CF genes.

Kyrin

thanks Doc Kyrin 😛 😆 .. just kiddin , yeah i have CF Kyrin explianed it pretty well i could go all scientificy on ya with numbers and gene names but i wont bore ya ..

Alyssa is clean we had the test done not a carrier , PD isnt a carrier so she had a 25% chance of being a carrier since i am the only one with the gene.

here is a little tid bit of info 1 in 24 people in North America are carriers of the CF , which was once a useful mutation as any one with CF or the carrier gene is immune to Typhoid, Bubonic Plauge , and tuburculosis

Thanks PurpleDragonClaw!

That is really interesting that people who have or are carriers of CF are immune to those diseases!
I am so glad that Alyssa isn’t a carrier…good thing they can test for those things! 😉

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