MALLORY GOES HOME TODAY!!!!!!

[Katherine]

Kyrin wrote:

yes, this is good, now perhaps the verbal jabs at you from Carol will taper off. Now that she has a beautiful little girl to tend to 24/7. It’s going to be a big change for them, I hope they manage all that paraphinalia okay…I have no idea what I would do if I had to deal with all those tubes and things sticking out of my little girl.

Got to hand it to them, they are pretty strong people to deal with all that for all this time. I pray that in time Mallory won’t need any of that crap and will be able to be a normal child soon.

Kyrin

I know, it must be hard to know that there are so many tubes going through her. They have been strong, and I am proud of them!

It actually turns out that Mallory won’t go home until tomorrow because there are some problems with the G-tube. I don’t know the specifics, but the doctors want to moniter her a little longer.

[Katherine]

Well, Mallory came home today on oxygen and a heart moniter. You should have seen Lance carrying the carseat with Mallory in it, the oxygen and the moniter. He was swaeting like a pig! 🙂 That is very understandable of course!
A respitory care man came to their home to hook up an oxygen machine with a long tube so that Mallory could be carried to any part of the house.
I feel bad for Carol though because Lance isn’t taking off any days (not even the weekend) the be with Carol for the first couple of days. I know she needs help all the time with Mallory, and I was there the first day, but I can’t be there all the time, and even when I am there, it is really hard to help with as much as I want to because I can’t leave Chloe down on the floor at their house because there are hazards everywhere. Fortunately she has a neighbor that helps her out most of the time.
It is a two person job to feed Mallory through the G-tube because one person needs to calm her down, while the other person feeds formula/breatmilk through the tube, otherwise Mallory pushes it all out.

We had a nervracking experience the first day with the heart moniter! Carol unhooked Mallory from it, and tried to turn it off, but it just wailed and wouldn’t stop. It sounds very similar to a fire detector going off, except it is a long-tone, and I could have sworn I was going deaf because my ears couldn’t seem to take the sound anymore because the sound seemed to shift from one ear to the other, and then it didn’t seem loud anymore. Suffice to say, we couldn’t get it to stop wailing even after unplugging everything it still wouldn’t stop. I knew there was a battery in it somewhere, but I didn’t want to start unscrewing things, so I covered the speaker, grabbed my phone, went outside, and called the 1-800 number on the back. After being outside with it for 5 minutes, I finally got a glance of my car and a lightbulb moment came to me. I opened my car door and tossed the stupid thing in there and shut the door. Ah….sweet silence! Suffice to say that we finally got a guy to come over to supply us with a new monitor, but he was laughing hysterically because I shut it in the car. He called it brilliant. 8) 😛

I am so glad Carol wasn’t alone with Mallory when it happened because Mallory was hungry, and it happened right then and Carol was starting to get a nervous breakdown. I told her to just go tend to Mallory, and I’ll take care of it. Even after that, she was still freaking out thinking that she did something wrong, but I tried to reassure her that it was just the machine, and I’ll fix it.
Silly Mallory didn’t seemed bothered by the sound at all and decided that she liked the sound because it calmed her right down. I don’t know why, but it did! 😀

Here’s to a new beginning! 😀

[Shawna]

We had a wound vac machine do something like that once…if it had been our machine we would have shot the dang thing. But we called the company up and they had another one overnighted to replace it. But man those alarms they stick on those things are loud!

I imagine they have to be, but there should be a shut off once you’ve been alerted and are tending to the patient.

Tell Carol to take it easy, try not to panic when things go wrong, and just concentrate on caring for Mallory and herself. The rest can wait. And yes, I mean the dishes, laundry, cleaning house, etc. can wait.

As for Mallory calming to the sound, she’s probably used to all those buzzers and crap, she’s spent most of her life thus far listening to them all around her, so I’m not surprised.

Everyone hang in there, this will get easier as you get used to the routine.

*hugs*

Kyrin

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