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Well ok tomorrow will make it one week. So far he is doing great! He is getting around sooo much better at home then he did while in the hospital. He had his first checkup with transplant on Tuesday. We met two other cf patients while waiting for him to get his pft’s done. One was 8 years post double lung transplant and he was doing great. The other hasn’t had a transplant yet but he wasn’t so sick to need one yet either. His mom was really interested in hearing what my husband and the other cf transplant patient had to say. While we were all talking this lady comes up and says she overheard us and just wanted us to know she was 9 years post transplant and doing just fine. It was nice to get to talk to them.
We had a bit of a scare when they tagged my husbands chart as isolation. They put on it that he had a certain bacteria that if it was true would send him into rejection right away. If transplant had thought he had it before he got his new lungs they wouldn’t have transplanted him. Of course we freaked when we got into the doctors office but the nurse said she thinks it was a mistake with the lab and he hasn’t cultured that bacteria since. She was going to call the main hospital and have them take it off his chart. I was still nervous about it even though she told us not to worry. They said he is a little anemic still and changed around some of his meds.
We have been busy busy busy since he has been home, going to doctors appointments and such. He has some chest tightness this morning but they think its from his sinuses which have been giving him trouble. Otherwise he says he feels great and has been walking all over the place. I have to say its been really hard taking care of him at home. This whole week I’ve had no energy and I have to dress, feed, and get his meds together. By the time I go to bed I’m worn out. He is slowly taking over doing his own meds and such but he still needs help. I got mad at him the other night for getting up to use the bathroom without me. He said he didn’t want to wake me up but I was afraid he would fall if I wasn’t there to help him.
I honestly feel like I’ve won the lotto. I still can’t believe that all of this has happened. I still need constant reassurance that my husband is ok. I’ve spent the last year hearing only bad news so its hard to switch gears.
You’re doing great! Don’t worry, as he gets stronger he’ll be able to care for himself. Just think, soon you will have a healthy husband who can start taking care of you and the baby. I am glad this happened now, rather than when the baby came, dealing with birthing her and taking care of his recovery at the same time would be really really hard.
Since it happened now, he should be more or less fully recovered by the time she’s here. Which is terrific, your daughter is going to get a great daddy, and one who can run and play with her, how awesome is that?
I know how tough it is to switch mental gears, especially after years of doom and gloom. You’ll get over it soon. I’m so happy for you guys, now your Mom can quit telling you he’s gonna die, etc.
And perhaps now she will be a better Mom and Grandma for you and your family. I hope so, for your sake.
*hugs*
Kyrin
This is awesome news!
Stay positive! He’ll have to go to the bathroom on his own at one point 😀 Honestly, not being able to go to the privy by yourself has to be one of the most humiliating things. Now that he’s home, I’m sure he feels more like himself and therefore will want to push himself harder – hopefully not too hard!
Get some rest. Slow down, it’ll be good for the both of you.
Sending big, huge hugs!
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http://www.sarahjestin.com/feedbacklists.htmGlad to hear that every thing is going well. Remember to take timeout for you . Also remember the “Secret”. Think only good things and you will only get good things in return
It’s great to hear that things are working out finally for you guys. 😀 It’s always great to talk to other patients who have gone through the same thing. There are lots of people out there who have pulled through something like that just fine after many years. It’s comforting to know, and gives hope! *hugs*
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