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(Sorry if some of this is hard to read/doesn’t make much sense. I’m pretty much scared out of my mind right now.)
I’ve been having hormone problems for years (horrible craps, hot flashes, hair in weird places, psycho mood swings, heart racing, constant nightmarish nausea & dizziness to name a few) so I finally went to the gynecologist a couple weeks ago and she sent me for a blood test to check my hormone levels.
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(Most of what’s below is copied from my livejournal, edited for language.)
So I got the test results back a couple days ago.
Apparently the pituitary gland in my brain isn’t working right and screwing up my thyroid and all my hormones, so… that’s why I always feel like I’m dying. Have to go to another doctor to find out more. x.x; So not helping my anxiety disorder. I’m gonna need an MRI too. Augh. I hope they don’t find, like a tumor or something. ._.;;
I knew it was something like that all along. Seriously, how many times have I told my parents and my doctors it’s something in my brain, it has to be? Everything else is fine so what else could it be? But they always told me I was imagining it, I was crazy, or I was making it up for attention/to be lazy. Well now there’s proof. *sighs* ‘Least I know what it is now…
My mother is seriously scaring the crap out of me. She thinks I have a brain tumor.
I can’t even get in to see the doctor til NEXT MONTH, and then the MRI probably won’t happen til like January at least. I have a hard time getting to sleep cause I’m scared half to death. I could be DEAD before the doctor sees me, or in a coma or something.
My parents want to sue my old doctor for telling me I’m crazy and refusing to see me unless I got counseling. She never believed me when I told her all my symptoms just because the blood tests kept coming back fine. But they never tested my hormone levels until I went to the gynecologist the other week.
Y’know, if I never went there, they never would’ve found out my pituitary gland and thyroid don’t work right, and this could’ve gone of for God knows how long. No one would’ve known I was really sick until I dropped dead. That’s what scares me the most. It was just a coincidence that I went to the gynecologist for the HPV shot and b/c pills (for PMS).
And what’s worse is… I started having these problems SEVEN YEARS ago. God only knows how bad this crap could really be if it’s been going on untreated this long. I’m so scared. Even if it is fixable. I’m… terrified. Most of the time whenever I stand up I get so dizzy that I fall over and hit the wall/chair/whatever happens to be there. It’s getting worse… I’ve had a nasty headache for almost two weeks. I really wish I could see the doctor and get the MRI sooner than the middle of December.
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So… that’s pretty much it. I want to call my brother and tell him just how wrong he was about me being crazy. He actually wanted me locked up in the nut house. Him and my mother; they were both convinced I was making this all up so I didn’t have to get a job. (I’m 20 and have never been able to work or learn to drive because I’m always so dizzy/nauseous/close to passing out.) My old doctor thought the same thing.
WHY would I make all this up? You think I enjoy being miserable? That I like being stuck and home and almost never able to leave the house without risking getting horribly sick?? What’s worse than being sick is the fact that no one ever believed me. Not once. It was like they thought every word that came out of my mouth was a lie. And that kills me inside. That no one trusts me. I hate it. It almost makes me WANT to die sometimes. But now it’s different. Now they KNOW there’s something wrong with me, and they can’t ignore it any more.
Sorry for the rant. I just needed to tell someone other than the few people that actually take the time to read my lj.
I’m sorry to hear about this, but its good that the problem is identified now.
In a case like this, you should be able to go to the urgent care clinic associated with your health plan so that they can see you right away. I suggest that you do that instead of waiting to see your regular doctor next month.
By the way, going to the urgent care clinic is no big deal. I’ve gone there myself before, because I didn’t want to wait to schedule an appointment with my regular doctor.
Now that you know what exactly is wrong, go forward. Read up if you can on what you have. Stay positive!
Big, big hugs!
Read my books! Volume 1 and 2 of A Dragon Medley are available now.
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http://www.sarahjestin.com/feedbacklists.htmIt’s always somewhat of a relief to be informed. I’m so sorry your going through this though, take care and keep us informed. 😀
It’s not a regular doctor I have to see, it’s an endocrinologist. December was the earliest they could get me in. I’m not sure a clinic would help at this point?
Here’s to the best of all possible outcomes!!
And the good news is that they don’t think that it’s that incredibly urgent and fast tracking you through the system, because that more often than not means they are worried about it being the worst of options!!
So lots of wishes and Roses!!
PaperCut wrote:It’s not a regular doctor I have to see, it’s an endocrinologist. December was the earliest they could get me in. I’m not sure a clinic would help at this point?
If the doctor at urgent care said that your situation was urgent, they would help get you scheduled with an endocrinologist immediately. This would also allow you to essentially get a second opinion, if your regular doctor had said that your situation wasn’t urgent.
Hang in there, at least you know that it isn’t all in your head, there IS something physiologically wrong.
I would call the specialist’s office and ask to talk to him/her over the phone right now. Tell them your symptoms and ask them if there is any way you can get help with the symptoms while you are waiting to see him in person. You shouldn’t have to wait six weeks with debilitating headaches and dizziness, they should be able to do something now. If they refuse, then go to the emergency room, they will step on it, and you will see a specialist sooner than 6 weeks, trust me.
If you feel scared and that your life is in danger by waiting, then don’t wait! Also, if they can help you now, then why should you continue to suffer on their timetable? Ridiculous! The stress of worrying for the next 6 weeks will not help you, and if you can’t stand or function due to dizziness and headaches, this is not minor. Go to the emergency room, tell them what your OB/GYN found out, and then make them help you. You have a right to feeling better.
If your family doesn’t back you up, then have someone who will come with you.
Hang in there.
Kyrin
Ah, boo, that is awful. I would try to step up the appointment by following suggestions of going to urgent care or ER, but still keep your appointment date, just in case.
If you need anything, I am a stone’s throw away.
*hugs*I’m PMimg you.
I went throught this sort of thing a few years ago. I had a family doctor who just didn’t listen and I switched doctors and after the first time he saw me he was sending me for tests. It was very scary, it sucks when you don’t know what your body is doing or why you aren’t like other people.
Big Hugs!!!
I hope you are feeling better and I am glad they found out something. Its been seven years, so I think you will be safe wating another month. I know it can be nerve wracking though. I hope you get seen sooner.
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