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I agree with Ski….he’s in the best possible place and I think it will speed things up with the transplant. With medical costs what they are these days, hospitals try to get patients up and about as fast as they can, so I think this will speed up the transplant process, which is a good thing! 😉
From what you’ve said it sounds like his family is a total loss but there is anyone, besides you, he can talk to? A friend or a minister? It might help if there is someone else for him to talk to. I’d say being really scared right now is totally normal but he might also be holding back some so as not to scare you or add to your stress. It must be so awful for him – knowing how much this is impacting you during your pregnancy. Or I would think the hospital would have people available to counsel transplant canditates. If the doctors haven’t already mentioned yet you might ask.
Good luck. I’ll be praying for both of you and keeping you in my thoughts. I hope they get his O2 up.
Sorry to jump on this so late…..
We are here for you and love you both! Sending warm fuzzies and hugs and love and warm wishes!
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Johns Hopkins is one of the best hospitals you can find, my dad spent many weeks there after our local hospital screwed up his intestinal operation and almost killed him. JH saved his life and fixed him up pretty well, but he ended up going to another specialist to get rid of the adhesions. I’ll try and find their name for you.
We now call my dad the bionic man =P He has kevlar lining in his abdomen and a few other man made parts LoL.
Anyway, sending lots of love and warm wishes!!!
I just hate John’s Hopkins because I’m there all the time. I may as well just set a bed up in one of the rooms and live there. It’s sad when all the staff know you and say hi every time you show up. So far no word on activating my husband on the transplant list. He has more bad days then good. Every day he has horrible anxiety and they put him on meds for it but it doesn’t seem to help. He has trouble breathing from 10 am until early evening. Its so bad he can’t sit back without his lungs filling up with fluid and then he can’t breath. I’m angry that no one seems to know why this happens every day or tries to fix it. All the doctors are away because of the holiday weekend so we are stuck with stupid inturns until they come back tuesday. On top of all this my job says I can’t use my fmla to take off and care for him when he gets home or go see him when we get the transplant call. They said I can’t leave work because he is already under a doctors care and if I leave and they find me at the hospital they will fire me on the spot. I have to contact my union tomorrow since I belive what they are trying to do is illegal.
🙁 Big, huges hugs!
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http://www.sarahjestin.com/feedbacklists.htmThat is not right that they are threatening to fire you if you’re with your husband during this terrible time! How cold and rotten they are to keep you away from him like that! You should be able to take that time off to be with him… especially during and after the transplant. There has got to be a way around that. Man, I really hate companies that are so hard and unsympathetic! 😡 I hope you can get something worked out soon. *big hugs*
😡 Unless the doctor or nurse or someone trained in special care is going to be at your house caring for your husband, then there is no way they should be able to fire you for being home to care for him. Some surgeries require someone be there afterwards! And not letting you take off to see him when you get the transplant call? Do these people understand what you & your husband are going through? You’d think they would w/the job you have! I can’t believe people aren’t more sympathetic.
Sounds like the windstone forum needs to go around kicking some butts at different work places (Cheryl’s workplace too, as I finally read that thread).
So sorry for you both, Purple.Yeah, I volunteer Nirvana, Ski, and GB for the job.
So sorry that your work won’t let you take time off. Do they have maturinty (sp?)leave and it is only if you have the baby you can use that? If you can use that then maybe get your doctor involved and say that you need to rest because of all of this stress.
dragonessjade wrote:Yeah, I volunteer Nirvana, Ski, and GB for the job.
So sorry that your work won’t let you take time off. Do they have maturinty (sp?)leave and it is only if you have the baby you can use that? If you can use that then maybe get your doctor involved and say that you need to rest because of all of this stress.Already there! 😈
Love you! Still sending big hugs and warm fuzzies!
We need GB’s arsenal. I am sure they will send someone home to care for him after the surgery or at least not release him till he is able to care for himself. I can see why work wont let her go, but they could be a little more understanding about it.
Well they moved him back to the critical care floor yesterday because of his crappy oxygen saturation. They also FINALLY activated him on the transplant list so now we just hurry up and wait. I called my union rep last night because what they are telling me about not being able to use my fmla didn’t sound right to me. The union rep took care of everything for me. He called my division chief and let him know what was going on and that they HAD to grant me emergency leave if I got the call while at work and had to leave. The union rep was a really nice guy and left me his cell number in case I have any issues he wants me to call him asap. I love being in a union 😛
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